Polycystic Ovary Syndrome (PCOS) is a common endocrine disorder that affects women of reproductive age globally. This complex hormonal condition is characterized by a combination of irregular menstrual cycles, excess androgen levels, and/or polycystic ovaries. It impacts metabolic, reproductive, and psychological health. The purpose of a dedicated awareness period is to educate the public and the medical community about this prevalent condition and the challenges associated with diagnosis and long-term management.
Identifying the PCOS Awareness Month
Polycystic Ovary Syndrome Awareness Month is observed annually throughout September. This designation came about through dedicated efforts by patient advocacy groups in the United States. A key milestone occurred in 2017 when the U.S. Senate approved a resolution officially naming September as PCOS Awareness Month.
This federal designation was further supported two years later when the U.S. House of Representatives passed its own resolution. The advocacy group PCOS Challenge: The National Polycystic Ovary Syndrome Association was instrumental in achieving this official recognition. This collective effort by advocates and lawmakers helped elevate the condition onto a larger public stage.
The Importance of Dedicated Awareness
A dedicated awareness month is necessary because PCOS is one of the most common hormonal disorders, affecting an estimated 6 to 13% of women of reproductive age worldwide. Despite this high prevalence, up to 70% of affected women may remain undiagnosed. This delay in diagnosis can be substantial, with nearly half of women in one large study seeing three or more healthcare providers before receiving a diagnosis.
A third of the respondents in that study reported the diagnostic process took more than two years, leading to dissatisfaction with the experience. The lack of timely diagnosis is concerning because PCOS is linked to severe long-term health risks. Women with the condition have a higher risk for type 2 diabetes, cardiovascular disease, endometrial cancer, and sleep disorders.
The syndrome is also the leading cause of anovulation and a major contributor to female infertility. Beyond the physical symptoms, the psychological effects, including issues related to body image and infertility, frequently lead to mental health challenges and social stigma. This combination of high prevalence, complex symptoms, and delayed diagnosis highlights a gap in public and professional understanding.
Research funding for PCOS has been comparatively low when measured against other chronic conditions with similar or lower prevalence and morbidity. A 2017 study found that research for PCOS was relatively less funded by the National Institutes of Health compared to conditions like rheumatoid arthritis, tuberculosis, and systemic lupus erythematosus. Greater education is needed for both the public and policy leaders to address this disparity and promote further scientific investigation into the causes and treatment of PCOS.
Taking Action During Awareness Month
During September, individuals and organizations focus on promoting education and support for the PCOS community. Advocacy groups, such as PCOS Challenge, Inc., organize events and campaigns to galvanize patients, healthcare providers, and policymakers. These efforts often revolve around specific weekly themes:
- Support and advocacy
- Fertility and family building
- Lifestyle management
- Related disorders
A major component of the awareness campaign is World PCOS Day of Unity, observed on September 1st, which encourages global participation. To demonstrate support, many advocates wear teal apparel, and numerous landmarks around the world are lit up in the color teal. The public can share their personal stories and experiences with PCOS on social media, using designated hashtags like #PCOSAwarenessMonth and #PrioritizePCOS.
Other activities include participating in events like the PCOS Challenge 5K Run/Walk series, which raises funds for research, education, and health screening programs. The month is also a time for educational symposiums that bring together patients and healthcare professionals to discuss advancements in research and care. These actions aim to improve diagnosis, treatment, and the overall quality of life for those affected by Polycystic Ovary Syndrome.