November is recognized as National Epilepsy Awareness Month (NEAM) in the United States, dedicated to increasing the public’s understanding of this common neurological disorder. Epilepsy is characterized by recurrent, unprovoked seizures resulting from sudden, abnormal electrical activity in the brain. The condition affects approximately 3.4 million people in the U.S., including both adults and children. The observance highlights the need for greater support and education for the roughly one in 26 people who will develop epilepsy in their lifetime.
Confirming National Epilepsy Awareness Month
The observance of National Epilepsy Awareness Month in November is rooted in long-term advocacy efforts. The Epilepsy Foundation initially established the month in 1969 to bring greater visibility to the condition. Recognition was formalized when the U.S. Congress officially declared November as National Epilepsy Awareness Month in 2003. This legislative confirmation underscored the national significance of the disorder and the need for public education and support.
This formal designation provides a specific period each year to focus national attention on the challenges faced by the epilepsy community. It serves as a unified platform for organizations to coordinate efforts and ensure resources and information are widely distributed.
The Primary Goals of the Awareness Campaign
A primary objective of the November campaign is to reduce the persistent social stigma and misinformation surrounding seizures. Historically, a lack of understanding has led to discrimination in areas like employment, education, and housing. By educating the public on what epilepsy is and what a seizure looks like, the campaign aims to replace fear with informed compassion.
Another major goal is the sustained promotion of research funding for new treatments and a cure. The campaign advocates for better policies that support individuals living with the disorder, such as improved access to specialized care and anti-seizure medications. The awareness month also seeks to improve the overall quality of life for people with epilepsy by normalizing conversations about their condition.
Recognizing the Symbols and Colors of Epilepsy Awareness
The color most associated with epilepsy awareness is purple, often represented by the purple ribbon. This hue was internationally adopted as a symbol of the condition due to its historical association with solitude and sensitivity. The various shades of purple sometimes represent the wide range of seizure types and the diverse experiences of individuals living with epilepsy.
The purple ribbon is displayed throughout November to signal solidarity and encourage open dialogue about the disorder. While November is the dedicated awareness month in the United States, the color is also featured prominently on March 26th, known as Purple Day. This separate, international effort uses the same visual symbol to broaden the global reach of epilepsy awareness.
Actionable Steps for Community Involvement
The public can take several steps to support the goals of National Epilepsy Awareness Month. A primary action is to seek out and complete seizure first aid training, which teaches the proper “do’s and don’ts” for helping someone during a seizure. Knowing not to restrain a person or place anything in their mouth can prevent injury and provide immediate, appropriate care.
Individuals can also lend support by contributing to organizations that fund advocacy and research programs. Participating in local epilepsy walks or virtual awareness campaigns helps to amplify the message. Sharing accurate facts and personal stories helps to dismantle long-held myths and fosters a more inclusive community.