Do You Need a Referral for Hospice Care?

Hospice care offers a specialized approach for individuals facing a life-limiting illness, focusing on comfort and quality of life rather than curative treatments. This comprehensive service provides medical, emotional, and spiritual support for the patient and their family. Although the process is structured, it is designed to be initiated quickly once the need is recognized.

Initiating Hospice Care

You do not need a formal referral to start the conversation with a hospice organization. The process often begins with a self-referral, where the patient or a family member contacts a provider directly to inquire about services and eligibility. This initial contact allows the hospice team to gather preliminary information and schedule a consultation visit.

Regardless of who initiates contact, a physician’s certification is legally required for formal admission and insurance coverage. This means the patient’s attending physician or a hospital discharge planner must ultimately provide a physician’s order for hospice care. The hospice organization facilitates communication with the patient’s doctor to obtain this necessary documentation.

The three common pathways to initiation are contact by the patient or family, an order from the attending physician, or coordination by a facility discharge planner. In all cases, the primary medical requirement is the certification of a terminal illness. The hospice staff works with the patient’s existing medical team to ensure all authorization steps are completed.

Essential Medical Criteria for Acceptance

Hospice acceptance hinges on specific clinical and legal requirements established by federal regulations. The central medical criterion is that two physicians must certify the patient has a terminal illness. This certification requires a medical prognosis of six months or less to live if the disease runs its normal course.

The prognosis must be certified by both the patient’s attending physician (if they have one) and the medical director of the hospice agency. The patient or their representative must also sign a statement electing comfort-focused care, also known as palliative care. This election requires waiving the right to receive curative treatments for the terminal illness, which is a foundational requirement for hospice enrollment.

Physicians use clinical guidelines and tools, such as the Palliative Performance Scale, to assess functional decline, weight loss, and frequency of hospitalizations to support the terminal prognosis. Common indicators of eligibility include a general decline in clinical status, recurrent infections, and disease progression despite medical intervention. Once certified, the patient may receive care through two 90-day benefit periods, followed by unlimited subsequent 60-day periods, as long as recertification confirms continued eligibility.

Financial Coverage Options

The vast majority of hospice care is funded through the Medicare Hospice Benefit (MHB), available to all eligible individuals with Medicare Part A. This benefit covers nearly all services related to the terminal illness with little to no out-of-pocket costs for the patient.

The MHB is comprehensive, covering services such as nursing care, physician services, medical equipment, and drugs for pain and symptom management. It also covers social work, spiritual counseling, and bereavement services for the family. Patients may have a small copayment, not exceeding $5, for prescription drugs related to symptom control.

Levels of Care

The benefit covers various levels of care, including:

  • Routine home care.
  • Continuous home care during a medical crisis.
  • General inpatient care for symptom management.
  • Short-term respite care for caregivers.

For those without Medicare, Medicaid and private insurance plans also offer coverage for hospice care. While specifics vary by state or policy, most plans generally follow the model established by the Medicare Hospice Benefit. The hospice organization verifies the patient’s insurance coverage to ensure all financial details are clear before admission.

The Admission Process and Care Planning

Once eligibility is certified and the patient elects the hospice benefit, the formal admission process begins with an initial comprehensive assessment. A hospice nurse or other qualified professional visits the patient, typically within 24 to 48 hours of the physician’s order, to evaluate their physical condition, pain levels, and overall needs. This assessment is conducted wherever the patient resides, most often their home.

Following this assessment, an individualized Plan of Care (POC) is immediately developed in collaboration with the patient, their family, and the attending physician. The POC is the blueprint for all services and addresses the patient’s specific physical, emotional, and spiritual goals. Care is delivered by an interdisciplinary team (IDT), assembled to meet the needs outlined in the POC.

The IDT typically includes:

  • A registered nurse case manager.
  • A medical social worker.
  • A spiritual counselor or chaplain.
  • A hospice aide.

This team provides ongoing support and coordinates the delivery of all necessary services, including the arrangement of medical equipment and supplies related to the terminal diagnosis. The Plan of Care is regularly reviewed and updated to reflect the patient’s changing condition and needs.